Dr. Gemma Jones
Keynote: Solving the mystery of the mouse in the bin
An overview of how improved understanding dementing illnesses, especially sensory-perceptual changes have advanced dementia care and communication interventions.
Afternoon workshop: Visuoperceptual changes in aging and Alzheimer’s disease: Ideas for adapting care environments to help compensate for changes and cue people
- Various components/features of vision change in predictable ways (e.g. colour vision, night vision, peripheral vision, figure/background contrast, rapid eye movements, motion and depth perception, object and facial recognition). These changes can lead to various types of visual phenomena, especially visual misperceptions and agonises.
- Unfortunately, the term hallucination, is still much overused to describe visual changes in people with dementia
- Understanding why, how, and in what order these can change helps guide the design of care environments and communication. It also helps predict particular types of behavioural changes, and guide both care and communication interventions
- This can also help make a paradigm shift from;
“people with dementia behave abnormally in a normal world” to “people with dementia behave (relatively) normally in an abnormally perceived world”.
Dr. Jones earned her HBSc in zoology in the University of Western Ontario, and her BSN in Nursing from UBC in 1985. S he then earned a PhD in psychology from the Universit y of London, Institute of Psychiatry, and has since spent over 30 years contributing to developing and identifying the knowledge base to help professionalize the new field of ‘dementia care’ internationally.
Dr. Jones has taught at a number of international universities including the South Bank Polytechnic, London, UK; the Admiral nursing programme (formational years of the specialist community dementia nurses, in London, UK); the Univ. of Utrecht post-graduate geriatric nursing programme, and the Erasmus Univ., Rotterdam, and continues today to teach on a freelance basis. One of her most influential courses, “Lighting DARC - dementia awareness reaching communities”, has been taught to almost 1000 people from the public who have an interest in dementia, including police and safety offices.
Dr. Jones was the founder of the first Alzheimer Café (AC) in the UK, in Farnborough, borrowing from the example of Dr. Bere Miesen, who founded the first Alzheimer’s Café in the Netherlands in 1997.
An AC is a post-diagnostic, group support and dementia education intervention, for people with dementia, their family carers. An AC is held monthly by a steering group, professionals and volunteers. It is held in a (safe) café-like environment, intended to be ‘low-threshold’ - safe to enter and attend.
In 2008, Dr. Jones became the founding Chair of the AC-UK Charity. There are now more than thirty AC’s in the UK, and Dr. Jones continues to support them through teaching, speaking, or opening other ACs, including several in Canada. Most crucially, Dr. Jones’ work moves away from diagnosis and medication to address the central needs of individuals and their caregivers, helping individuals and their families cope with a potentially devastating diagnosis and equipping them with resources and tools to successfully manage the illness and its progression.
Dr. Jones has published several books on caregiving in dementia. She is renowned worldwide for her expertise on dementia, elderly care, and Alzheimer’s, and is credited with helping changing the approach of community health workers around the world when treating and assisting patients and their caregivers.
Download Dr. Jones' article "Dementia care: Involving people in Alzheimer's cafes".